Monday, March 1, 2010

Love, Me

I started Feb off wondering exactly what I could do to feel love and show love, as I’ve been struggling with this for years. I haven’t forgotten about it, it has been solidly on my mind throughout the past month. We have been going through tests for my 18 mo old son to figure out an illness that just started the end of Jan. What we were initially told was likely seizure disorder has now been ruled out and we are looking a possible diagnosis of a form of Palsy, due to a traumatic emergency delivery and that he stopped breathing after he was born. The also said his development, which due to prematurity we follow on a "corrected age" of -6 weeks, has now been delayed to -12 weeks. We will spend the next month taking him for more tests and assessments and will have to wait until April to know what is really happening in his little body. My husband and I are beyond frustrated, because I have seen him seize and tremor and shake now for 5 weeks with no answers and no way to stop it. My daughter is terrified and scared she’s going to “hurt” him. But, I have to say the love and support I have received from the few friends and family members I have shared this with has overwhelmed me. We are truly blessed and we will get through this, and our support system is nothing short of amazing.

Another thing that happened this month and gave me some new perspective is through the unfortunate loss of an Uncle, the family that I’ve not been in touch with since my (2nd) Dad passed away 3 years ago was reunited and it’s like we never were apart. What got me the most was this: though my Aunt and Uncle were older, they were high school sweethearts and they still lived with one another. Over the past years, his health had declined and her mental capacity had declined as well. When he passed away last weekend, she didn’t even know he had died, because she hadn’t known they were even in the same room, in the same home or even eating at the same table for quite a while. He was just a new face every evening when they sat down. Since she was unable to attend the funeral, they read one of many love letters she had written to him over the years as her part of the eulogy. Their daughter said that her Dad had saved all of them, because he knew that love for him was still inside of her and that he would read them from time to time. Man…that hit me so hard. Even if we get too busy to say it every day, I feel it and the people that I love deserve to know it. So, Shelly…thank you for posting the link on how to write a love letter before Valentine’s Day, because for the first time in my life, I wrote one to my husband. He cried when he read it. And hopefully, we won’t ever be sitting at the dinner table together and not recognize one another, but if so, he can pull out that letter and know that even though I wrote it years before, that very love is still inside of me.

1 comment:

  1. Bless you and your family! Prayers and grace sent.

    I was also touched by loss this month, my best friend's father. He was like a dad to all of us growing up. His marriage was rock solid and I was greatly influenced by the amount of kindness, respect and love he showed his wife no matter what the circumstance. It's wonderful to have someone like that in your life to look up to. Seeing her at the funeral was so heartbreaking. Everyone will miss him dearly. It reminded me of how lucky I am to have great love in my life.

    ReplyDelete